“He has had Alpha-1 antitrypsin deficiency for years but it’s gotten worse. He needs a lung transplant but may be too weak to go through with it. He also has emphysema and chronic gastrointestinal bleeding, which his doctors have had a lot of trouble stopping. It’s the bleeding that’s the most problematic part. It could kill him. For years, Michael has been working with his doctors to try to make sure it doesn’t progress. He has been on many medications that have stabilised him. He can barely speak. The vision in his left eye is 95 per cent gone.”